tag:blogger.com,1999:blog-2593095362614273040.post5023660456565422232..comments2019-06-28T03:50:57.181-07:00Comments on Sleeping Around: Adventures in Narcolepsy: Father's DayAnonymoushttp://www.blogger.com/profile/02863963269642684619noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2593095362614273040.post-28231745643323743842010-08-17T16:00:05.487-07:002010-08-17T16:00:05.487-07:00@ Lady Jae --
Wow, I am so sorry that you have so ...@ Lady Jae --<br />Wow, I am so sorry that you have so little support. I raised four kids and found that overwhelming at times even though (1) I wasn't sick and (2) I have always been fortunate to have a lotof support from my family. <br />I admire your courage in sharing your story, and your commitment to being the best mom you can to your kids. Perhaps a silver lining of sorts is that this experience may help them grow up to be super understanding, supportive adults to the others in their lives. <br />I am sorry that you have been wrongly labeled as lazy, clutzy, etc. That is certainly one of the sad legacies of this disease -- most people just really do NOT understand it at all. Tell your family to watch the Nightline Prime episode on ABC this Thursay. Perhaps they will understand you better when they see that there are others in the boat and we are all bailing as fast as we can! Hugs!Anonymoushttps://www.blogger.com/profile/02863963269642684619noreply@blogger.comtag:blogger.com,1999:blog-2593095362614273040.post-58740291546643712172010-08-17T06:25:33.781-07:002010-08-17T06:25:33.781-07:00Thank you for sharing. My recent diagnoses of Narc...Thank you for sharing. My recent diagnoses of Narcolepsy has answered many questions. We found out due to cataplexy attacks. The more I learn the more amazed I am. I have had narcolepsy most of my life, always known as the clutz, lazy, to tired for anything. The reality was different unfortunately now at 38 I am understanding or trying to. I can relate to many things in your posts. I am raising my 6 children alone right now. On days when due to either narcolepsy or fibro I cant get up easily and the kids fight, well I am sure you can imagine the scene. Me trying to hurry to get up to help break up the fight, frustration building, I usually fall out of bed and not so gracefully.Anonymoushttps://www.blogger.com/profile/09147295989188297298noreply@blogger.comtag:blogger.com,1999:blog-2593095362614273040.post-61204020101253837922010-06-24T16:42:40.830-07:002010-06-24T16:42:40.830-07:00I promise to put up some information on narcolepsy...I promise to put up some information on narcolepsy with cataplexy soon... I do want to share background that will make the disease more understandable to those who don't live with it!Anonymoushttps://www.blogger.com/profile/02863963269642684619noreply@blogger.comtag:blogger.com,1999:blog-2593095362614273040.post-85542981647933416862010-06-24T13:25:59.536-07:002010-06-24T13:25:59.536-07:00Trish, I did not know that you are dealing with th...Trish, I did not know that you are dealing with this in your family. I am not sure what narcolepsy is but I will look it up so I can understand your family situation. <br />Keep writing Trish, and I will keep reading.<br />My husband keeps a lot of his health issues in. I admire Matt for being open and sharing.<br />Teresa LarsenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2593095362614273040.post-83255854213482451472010-06-23T22:03:07.977-07:002010-06-23T22:03:07.977-07:00Thank you for sharing your reflection on this post...Thank you for sharing your reflection on this post -- I really appreciate your kind words!<br />TrishAnonymoushttps://www.blogger.com/profile/02863963269642684619noreply@blogger.comtag:blogger.com,1999:blog-2593095362614273040.post-82931394577864116302010-06-23T15:31:44.210-07:002010-06-23T15:31:44.210-07:00What a generous account of your life with narcolep...What a generous account of your life with narcolepsy and how it affects the whole family. That you balance the changes with what is special in your relationship, including what makes redefining emotional boundaries worthwhile, is incredibly special!Anonymousnoreply@blogger.com